When does the fatigue ease up? (2 weeks po)
Post your questions and hysterectomy stories here
Random first period breakthrough after 2 years of being in Orlissa?
This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. Everyone is welcome, but please help us to keep this a supportive community by being considerate to each other. Please read the rules and guidelines section before posting.
“We don’t have time to get to everything today”
A place of support for those living with, or affected by, chronic illness. Open and welcoming to all. This subreddit is for social and community support, not medical advice.
Book reccomendations?
For the broken, malfunctioning, pained people of the world and their friends/family. Got pain? This is the place to be. Bitching, complaining, whining, and otherwise venting about your condition is encouraged. Stop by the chat and say hi!
Advice wanted: “House too small” insurance denies smartdrive
A sub all about chairs on wheels. Here you can discuss your wheelchair, experiences, anecdotes and sob stories, purchase tips, wheelchair sports, accessibility concerns, pitfalls, tips, pictures, wheelchair concepts, travel advice, etc.
New diagnosis drop: Airless Danlos Syndrome 😂
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you! _._._._._ Feedback Forms: https://www.reddit.com/r/ehlersdanlos/s/fwQN2A4c2n
Second surgery awake and feeling everything
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you! _._._._._ Feedback Forms: https://www.reddit.com/r/ehlersdanlos/s/fwQN2A4c2n
Are POTS clinics worth it?
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
Woke up from excision surgery with no pain medication
This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. Everyone is welcome, but please help us to keep this a supportive community by being considerate to each other. Please read the rules and guidelines section before posting.
Nerve block doesn’t work?
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you! _._._._._ Feedback Forms: https://www.reddit.com/r/ehlersdanlos/s/fwQN2A4c2n
Worst case of endo didn’t show on ultrasound
This community aims to support all people affected by and interested in endometriosis. We pride ourselves on being a friendly, inclusive place, where patients and loved ones alike can discuss thoughts and concerns, ask questions, and share information. Please try to engage with others in an empathetic and supportive manner and remember that Endometriosis is an extremely varied disease and each patient has different circumstances, experiences and treatment options.
Vascular surgeon stresses importance of hEDS diagnosis
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you! _._._._._ Feedback Forms: https://www.reddit.com/r/ehlersdanlos/s/fwQN2A4c2n
My gastro’s office, thought y’all would appreciate 😂
A place of support for those living with, or affected by, chronic illness. Open and welcoming to all. This subreddit is for social and community support, not medical advice.
Anyone else diagnosed with pelvic congestion syndrome and/or May Thurners?
This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. Everyone is welcome, but please help us to keep this a supportive community by being considerate to each other. Please read the rules and guidelines section before posting.
Healthcare friends are the least empathetic?
A place of support for those living with, or affected by, chronic illness. Open and welcoming to all. This subreddit is for social and community support, not medical advice.
Symptoms worse for days after fainting episode?
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
New endo lesions aren’t possible after excision surgery?
This community aims to support all people affected by and interested in endometriosis. We pride ourselves on being a friendly, inclusive place, where patients and loved ones alike can discuss thoughts and concerns, ask questions, and share information. Please try to engage with others in an empathetic and supportive manner and remember that Endometriosis is an extremely varied disease and each patient has different circumstances, experiences and treatment options.
Denied hysterectomy for being too young (26)
Post your questions and hysterectomy stories here
Passed out days after tilt table
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
Midordrine v. propanolol?
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
Feeling hopeless- bc next steps?
This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. Everyone is welcome, but please help us to keep this a supportive community by being considerate to each other. Please read the rules and guidelines section before posting.
2nd migrated IUD?!
I want women to be able to talk about side effects of mirena and other hormonal iuds. THIS IS A SAFE PLACE. Feel free to reach out directly with any concerns or issues. I encourage you to use post flairs to help others find related information. If you have suggestion for new flairs please let me know! Let’s not forget to post about positive experiences too!!
Battling PMS anxiety and fatigue?
This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. Everyone is welcome, but please help us to keep this a supportive community by being considerate to each other. Please read the rules and guidelines section before posting.